List: My Journey : Mast Cell Activation Syndrome(MCAS) | Curated by Sara Sakura

Feb 23, 2025
10 stories
My Journey : Mast Cell Activation Syndrome(MCAS)I was misdiagnosed a lot and doctors overlooked my new illness for a long time. In the meantime my condition worsened. It was really unfortunate. That's why I want as many people as possible to know about MCAS.
Sara Sakura
The day the first patient with MCAS was medically recognized in my countryFinally got my diagnosis of Mast Cell Activation Syndrome in Japan.
Dec 27, 2024
Dec 27, 2024
Sara Sakura
Unfortunately, this is the current state of medical care in Japan: Mast Cell Activation SyndromeSo much was happening around me… The reason why I haven’t been able to update for a long time.
Dec 27, 2024
Dec 27, 2024
Sara Sakura
The doctors are quietly trying to kill potential Mast Cell Activation Syndrome patientsJapan has only me with MCAS and many of the doctors in Japan are the worst, but I am still trying to fight.
Dec 27, 2024
Dec 27, 2024
It's very hard to find friends when you have illness or disability. How can I stay home and find new friends?
Sara Sakura
How do people with illness or disability who can’t leave the house get friends?It’s very hard to find friends when you have illness or disability. How can I stay home and find new friends?
Jul 10, 2023
Jul 10, 2023
Are people with MCAS incapable of romance? No, even people with MCAS can get partners. But there are a ton of problems out there.
Sara Sakura
Romance Risk and Mast Cell Activation Syndrome: Dating, Relationships, Marriage, Sex, Pregnancy…Are people with MCAS incapable of romance? No, even people with MCAS can get partners. But there are a ton of problems out there.
Jul 8, 2023
Jul 8, 2023
Most Japanese cannot speak English. It makes it more difficult for them to understand and accept MCAS…
Sara Sakura
Visualize the main symptoms of Mast Cell Activation Syndrome: A Challenge in Translating from…Most Japanese cannot speak English. It makes it more difficult for them to understand and accept MCAS…
Jun 16, 2023
Jun 16, 2023
There is no medical information about MCAS in my country. So I am translating medical papers myself. Here are some of them.
Sara Sakura
Diagnostic Criteria for MCAS: A Challenge in Translating from English to Other LanguagesThere is no medical information about MCAS in my country. So I am translating medical papers myself. Here are some of them.
Jun 14, 2023
Jun 14, 2023
There are no cases of MCAS in my country, So no information about it. Doctors don't know MCAS and there are still no MCAS patients.
Sara Sakura
There is only one patient with Mast Cell Activation Syndrome in my country: It hurts too much and…There are no cases of MCAS in my country, So no information about it. Doctors don’t know MCAS and there are still no MCAS patients.
Jun 13, 2023
1
Jun 13, 2023
1
Are you planning to meet someone who has Mast Cell Activation Syndrome(MCAS)? Learn from real cases!
Sara Sakura
List for meeting patients with Mast Cell Activation Syndrome: How do I see someone with Mast Cell A…Are you planning to meet someone who has Mast Cell Activation Syndrome(MCAS)? Learn from real cases!
Apr 5, 2023
Apr 5, 2023
From the day after I was born, I had a skin problem of unknown cause. That was the beginning of my strange symptoms.
Sara Sakura
The beginning of weird symptoms: The baby really have atopic dermatitis and pneumonia?From the day after I was born, I had a skin problem of unknown cause. That was the beginning of my strange symptoms.
Jan 8, 2023
Jan 8, 2023